Alex, a two year old boy, was born twelve weeks premature. He lives in the village of Glengoole with his parents, two older sisters and two brothers. This is his story, to date, as told by his mother Maggie Butler.
‘When we eventually brought Alex home from hospital , after seventy days, we were aware of the diagnosis as scans had revealed that he, most likely, had Quadriplegic Cerebral palsy, and there was damage to both sides of his brain. This condition brought with it a whole range of other health issues such as feeding problems,reflux, breathing issues, vision problems & seizures. He had painful muscle spasms and his Daddy and I used to take turns carrying him up and down the house, which had a soothing and relaxing effect
After about four months we were put in contact with The Jack and Jill Children’s Foundation. A liaison nurse came to see us and we were offered respite hours, so that we could get some rest or take the other children out, They gave us advice, pushed for the services including equipment which Alex required. They made appointments with specialists who laid out treatment paths. As a result of all of this Alex was started on a course of medicine which relaxes his muscles and eases the pain of the spasms. He has weekly Physiotherapy and Speech Therapy sessions as well as a programme of activity, which we do with him at home, each day. Alex is now a much happier and comfortable little boy.
Read Alex’s full story in this week’s Tipperary Star.